Alies Maybee collaborates as a patient/caregiver in many aspects of healthcare including research, service delivery and policy with a focus on system change. As a former technologist, she has a strong interest in how technology can be used to improve both health services and healthcare systems. Her work in research includes being a patient partner on many projects since 2014 including in the research management and governance area.
Alies looks for new ways to involve people from all backgrounds and communities which led her to co-initiate EMPaCT, a community table of people with diverse lived experiences focused on health equity. She is a co-founder and current co-chair of the Patient Advisors Network (PAN), a national community of practice for patient/caregiver partners. PAN has just completed the report: Reimagining the research landscape. Funded by the Canadian Institutes of Health Research’s (CIHR) Refresh of the Strategy for Patient-Oriented Research (SPOR) PAN was asked to gather insights of patient/caregiver partners about their experiences in research.